| Title | Frontotemporal dementia: Change of familial caregiver burden and partner relation in a Dutch cohort of 63 patients |
|---|---|
| Published in | Dementia and Geriatric Cognitive Disorders, Vol. 26, No. 5, p.398-406. ISSN 1420-8008. |
| Author | Riedijk, S.R. (Samantha); Duivenvoorden, H.J. (Hugo); Rosso, S.M. (Sonia); Swieten, van J.C.; Niermeijer, M.F. (Martinus); Tibben, A. (Arend) |
| Date | 2008-11-01 |
| Language | English |
| Type | article |
| Abstract | Background/Aims: The current study examined the change of caregiver burden and the development of the quality of the partner relation in frontotemporal dementia (FTD). Methods: During a 2-year period, deterioration, behavioural problems, caregiver burden, general psychopathology, quality of life, social support, coping strategies and relationship quality were inspected in 63 FTD caregiver-care recipient dyads. Results: After 2 years patients reached maximum dementia severity with stable Neuropsychiatric Inventory levels. Contrary to expectations, caregiver burden decreased and psychological well-being remained stable. Coping style and social support changed unfavourably. Relationship closeness and getting along were preserved, whereas communication and sharing viewpoint on life were dramatically reduced. Conclusions: FTD caregivers need support in coping with the increasingly hopeless situation of their patients. Future research methods into caregiver burden should address response shift as a means for psychological adjustment. Copyright |
| Publication | http://hdl.handle.net/1765/30372 |
| Persistent Identifier | urn:NBN:nl:ui:15-1765/30372 |
| Metadata | XML |
| Repository | Erasmus University Rotterdam |
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