Prevalence and incidence of palliative terminal care for nursing home patients
09 / 2000 - 01 / 2007
[OBJECTIVES:] To assess the incidence and prevalence of the need for palliative terminal care among patients in Dutch nursing homes. To assess care-needs, problems, and the nature and amount of care that is provided, as well as the spiritual, psychological, cognitive, emotional and physical problems of these patients. [METHODS:] This is a prospective observational study. In 15 nursing homes, during a period of 1 year, all incident patients who have a remaining life-expectancy of 6 weeks or less will be included (expected N=480). Basic patient characteristics, the care provided, and spiritual, psychological, cognitive, emotional and physical problems will be assessed until death. Moreover, significant problems that arise in providing the care will also be registered. A semi-structured interview will be held with a random sample of 24 patients or their partners to assess the problems from their point of view. [RESULTS:] 15 representative nursing homes have agreed to participate. Data-collection has already started in 12 nursing homes.