| Due to advances in pediatric cardiology and surgery, most children born with a cardiac defect now survive into adulthood. Many patients continue to require specialized medical care, and this has led to the establishment of adult congenital heart disease as a subspecialty of cardiology. However, epidemiological and clinical characteristics, many aspects of care, the role of clinical guidelines and outcomes in this population are still insufficiently known. The Euro Heart Survey on Adult Congenital Heart Disease has resulted in a database of more than 4,000 adults with an average follow-up of 5 years, which forms the basis for Peter Engelfriet's PhD project. |
